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Protecting your information and data

Participation in the Great Minds is confidential. We will only share your data with studies you've agreed to take part in. Your data may be used for monitoring and/or auditing of the study to ensure that the research is complying with applicable regulations.

Protecting your information and data

 

When researchers use our website they use the Great Minds feasibility tool to check if there are enough people who fit their study criteria. This only shows researchers anonymised data and will not give them any information that identifies individuals. If Great Minds invites you to join a clinical trial and you agree, Great Minds will give the trial researchers more detailed information – including your contact information.

Protecting your information and data

We won't notify your GP that you have joined Great Minds or contact them about the information you provide when you register. If you are concerned about your memory or anxiety levels we recommend that you contact your GP. 

Protecting your information and data

Great Minds holds data securely on DPUK’s IT infrastructure. This uses the MRC-supported UK Secure e-Research Platform (UKSeRP) and operates under the highest accredited Information Security Management System (ISMS). Members' names and contact details are held in an encrypted database hosted by UKSeRP and all data and backups remain within UKSeRP secure infrastructure.

Cambridge Cognition and Mezurio provide online and smartphone-based memory and mood assessments for Great Minds. The online memory and mood data is ‘pseudoanonymised’, which means that members' names are replaced by numeric codes so that the data is non-identifiable, before it is stored on their secure servers. Data collected by Mezurio will be encrypted and sent to a secure server within the University of Oxford Big Data Institute, maintained at a standard suitable for GDPR compliant clinical trials. Cambridge Cognition are part of the secure UKSeRP secure infrastructure.