To better understand and treat the diseases that cause dementia, researchers rely on data provided by health study volunteers who, year on year, undergo a variety of tests. As part of joining Great Minds our members, who come from previous health studies, are asked to complete online- or smartphone-based cognitive tasks. In her blog, Leona Wolters – Research Assistant on Great Minds – describes what cognition is and how cognitive assessments help researchers find the right people for the right trials.
28 February 2019
Catherine Calvin, an analyst at Dementias Platform UK (DPUK), investigates population study data of adults in midlife and older, to understand factors that relate to the risk of developing dementia in later life. In a recent paper published in Nature’s Scientific Reports, Catherine demonstrates that genetic susceptibility to developing obesity – a contributing risk factor for dementia – may be modified by lifestyle habits.
Five members of the public, all committed to the fight against dementia, recently joined us round the table in London. They shared with us their perspectives of what is critical for volunteers to know before joining research studies. We discovered that clear communication around data security and the volunteer’s control over their contribution is vital to build trust.
As a data curation research assistant for DPUK, Josh is chipping away at the coalface of DPUK’s mission to bring cohort data together into a powerful resource for researchers. In his blog he allows us an insight into a key job that makes it possible for researchers to compare data across different cohorts in the Data Portal.